Category Archives: #EndtheStigma

“I hate the word, “bipolar.” It’s ugly, an overused throwaway word. Call me whatever.‬ #I’mAWhatever if you must. Jackie works too.”

I couldn’t resist responding to the lovely Carol Adriana Estrella‘s post on Facebook this morning.

“Doing a small survey:
What are your first thoughts when you hear the word “bipolar”. Being that is an illness, I see it used around A LOT as an adjective or a subject.”

Visit the very hip and informative blog Is Ok Not To Be Ok to view some of the varied responses (including my abridged one).

Carol explains, “I did a very informal survey today asking people what were the first thoughts that came to their mind when they heard the word: bipolar. I got an incredibly array of answers from the usual (and often not funny) jokes, to what a harsh reality is to live as a bipolar individual.”

Thank you, Carol Adriana Estrella for starting the conversation today.

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I hate the word, “bipolar.” It’s ugly, an overused throwaway word. Call me whatever. I’m a ‪#‎Whatever‬ if you must. Jackie works too.

The forward from GEORGIA PINE explains how strongly I feel about the word(s), “BiPolar Disorder.”

“Perspective

I wrote The Vast Landscape, the prequel to Georgia Pine at a dark, scary time in my life. Harrison, the brash heroine, was someone tangible I could cling to. She gave me reason to get up, to go on, to fight, a much-needed respite from what was happening in my real, everyday life. I made the conscious decision not to write about manic depression, the disease that has disrupted every neuron firing through my beautiful, chaotic mind. Bipolar Disorder, the label I detest, is en Vogue. It appears in trendy bestsellers, Oscar winning films and sensationalized television. It’s glamorized, modernized, made to look cool. Trust me, it is not. Mental Illness is the train wreck, the ugly, cruel, exhaustive, intangible, and solitary battle. It does not discriminate among rich, poor, smart, stupid; it brings grown men to their knees, ripping whole families apart. Writing The Vast Landscape freed me to live my dreams on the page. Harrison is I, I am she, mixed together so deeply the lines disappear. The outlines blur, intentionally. Was The Vast Landscape reality or fantasy? That is for the reader to decide. We are all disabled, broken parts, lost individuals, trying to find our way. Truth is what you know, here and happening now. There is only love and love is the bravest character of all. Harrison is the voice in our heads, asking the important questions. Where do I fit? Why am I here? Will I love, be loved? We are born with a fixed expiration date, yet we carry on, walking this earth the best we can until we’re pixie dust. Cherished, kept alive in memory and yellow parchment, we become precarious, aged photographs in a cardboard box. Lives touch, intersect in the most unpredictable yet meaningful ways. The essence continues because you do. Harrison leaves the door open a crack. I seize the opportunity to revisit my whole, healthy self a bit longer, live in the mystic beach home I adore, dream eyes open. Hope is our greatest asset. To choose hope against the worst possible odds is the true measure of life.
The story continues in… Georgia Pine.”

Excerpt From: Jacqueline Cioffa. “Georgia Pine.” iBooks.

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“This first Friday in June, all I know is I am doing my best. My very damnedest. And it looks like this…”

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I felt like this today.

You don’t need to hear about the numbness, excruciating pain, overwhelming anxiety, residual anxiety, paranoia, dizziness  or that I prayed to whomever was listening to just end it. Fucking end the ridiculous, relentless, ad nauseam, non-sensical hours that consume my days. Frankly it’s wearing me down, ripping me to shreds and fucking exhausting fighting invisible monsters.

Yes, I know I’m sick. Yes, I understand tapering off benzos is worse than hell it’s maggot filled shit. Yes, my empathetic, cool therapist talks it out. Reassuring me I am indeed strong enough.

Resilient enough. Tough enough. However. Makes me wonder.

Where in the hell am I going to replenish precious missing elements when the planet is currently fluctuating between earthquakes, tornadoes and drought? In a constant state of chaos, flux. How to replenish when I can’t remember pieces of yesterday. Blurred and hazed memories clog and pollute the brain.

Where? How? Why? Great questions. With zero answers.

I said NO anyway. For shits and giggles, ya’ know.

I don’t feel like shit, I feel eradicated, violated and obliterated.

I go to the hairdresser’s armed with my peppermint and lavender doused washcloth unsure I can make it through the hour-long dye process without flipping the fuck out.

Home. I want, need, have a deep desire to be home.

Grey roots and I have a larger more burning desire to feel pretty, alive, and validated.

Breathe, just breathe. You are safe. You are fine. You’ve been through this before. You are safe, breathe.

Your stylist is your dear friend who knows and loves you well she will take you home if necessary.

FUCK YOU anxiety, fuck off, go fuck up someone else’s day/ existence.

It’s sitting there threatening strangling my neck, throat, cramped shoulders, tingling extremities and limbs. Sitting patient, greedily waiting to pounce.

I apply eyeliner (Armani #02 pencil my fav.) and concealer to brighten my shiteous, difficult existence and in spite.

Tomorrow will come with or without me, isn’t that the cliché? What they say? Whoever the hell they are, Martians maybe. Fuck if I know, can’t be sure.

This first Friday in June, all I know is I am doing my best.

My very damnedest.

And it looks like this… on the outside

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“You never really understand a person until you consider things from his point of view… Until you climb inside of his skin and walk around in it.” – Harper Lee

“I learn love from her everyday.” Jacqueline Cioffa

“All she wants is to be close, eat, cars rides and chase things. I learn love from her everyday.”#Lupita ❤

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My life is a barrage of pills, moods, malaise, emptiness, haze, mania, depression that stagnates my spirit, anxiety ping-ponging against my brain fighting an illness I cannot see. The willful fighter, deep-thinking me and misfiring neurons I cannot comprehend. There is no recovery from a serious mental illness, there is only finding ways to cope, reasons to get-up to battle and exist one more day.

I can’t just ‘pull it together,’ no matter how deep the desire or the will.

It’s generational. The genetic jackpot I won, but did not enter.

I. was. born. this. way.

I. was. born. this. way.

I won’t win, there is no winning, no contests, no rules. There is only luck and time before I am gone away.

I am not misguided, I understand exactly what I am up against. Well, sorta. I understand each day gets a little harder, the thoughts a little louder, the light a little dimmer and the physical discomforts heavier.

My words, while I can still see them and get them out are not to be misunderstood or misconstrued. This life, my life has been beautiful in more ways than I can write.

The memories help me stay.

The spirit animal kissing away my tears, snuggling so close I feel her beating heart against my skin is never too far away. She keeps me present and accountable.

Smiling from the heart is the rarity, and this dog makes me smile. Multiple times a day. She understands my crazy, the sorrow and spectacular. She loves me anyway.

No matter the color or mood.

“The chaos comes with you,” simply stated my friend. -The Red Bench excerpt by Jacqueline Cioffa

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“As an artist do I need constant flux to create? How will I find words in the woods surrounded by trees and rotten cornfields? How will I find anything besides dying, wet leaves?

I cannot escape the volume in my head, the constant churning. The Jesus fucking Christ, turn it down chatter. I have been told to be patient. Wait for the drugs, the quieting veil, and the lavender calm to smooth out the ringing. My mind is full of death and black spots I’m sure, much like a stroke patient after a spell.

   “The chaos comes with you,” simply stated my friend. He was right. I am here, here am I. Sick and tired, tired and bullshit sick.

The blank paper waits and my hands navigate the keys and the thoughts go where they may.”

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-excerpt from “The Red Bench” by Jacqueline Cioffa

One, Two Buckle My Shoe

One, Two Buckle My Shoe

By Jacqueline Cioffa

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One, two buckle my shoe. I don’t know how other writers find their way into a story.
For me, it usually goes something like this. I hear a line in my head, a word, see a visual, and then the story plays over and over, until I release it onto the page. Its cathartic, sometimes it takes me back, some days it moves me forward when I am wallowing and can’t get unstuck. Most times, it’s just an honest, real interpretation of an emotion. I’m an emotional girl. Or, so I’ve been told.
I live with the image, words, sometimes for days, weeks, even months. Then, like magic or being possessed, I have to get it out. My fingers take over the keys; my mind wanders and dictates the thoughts, mulling it about until there is a clear picture. I see mere babies growing, learning the simple phrase, “One, two, buckle my shoe.” We are all preconditioned from the start. “Look at me, Mommy look what I can do. I can talk, walk and dance all on my own.” And we wait, for the love, the adoration, the pride on their faces. The loving adoration of a parent and their perfect can do no wrong baby girl. We wait, and then we wait some more.” Look Daddy, I dyed my hair red with a blond streak, I wanted to be different”. I got drunk in school, lashing out against the bullies, the in crowd, and the machine, desperate to be an individual. Daddy holds my head as I puke and strokes my hair, he tells the first lie. “It’s ok, baby girl, you are my princess, you are going to be all right.” And we wait, for the clap. Bravo, you are so smart, so beautiful they say. You are positive they mean it. You miss the roll of the eyes in frustration, or the bed time whisper and tears, “I’m so worried about her.” She’s too young to be this sad, so depressed, to be so oddly different. One, two buckle my shoe. I must conform to society, wear the same shoe, walk the same old boring old walk, say all the right things. I’m sad for the young girl, so miserably, visibly unhappy, in high school. I hate the way this feels; I take note that I am different. They say nothing, providing all the pleasantries and comforts of a supportive, loving home. I am so lucky like that. Maybe they knew all along, how horribly difficult things would turn out, how unusual I would actually become.
“It’s not her fault, it’s in her genes.” Oh my God, did they speak it aloud? She’s Mentally Ill. What?! One, two, buckle my shoe. I try to be normal, to please them, to see the admiration still on their faces. My daddy is gone, he died a broken man. Mental Illness got him, no matter how hard my mother fought. She did not win. We buried him in a grave and he has not yet come back. I wait for him. I still wait for him. In my dreams, during this sabbatical and these sick days, he hasn’t come. He can’t quite find his way back. One, two buckle my shoe. My mother has aged so. The bravest, head strong, caring, woman I know. Cursed in this lifetime to fall in love, make a family. One, two buckle my shoe.
With a baby daughter who would grow to walk in her father’s shoes. I didn’t mean it, as hard as I try, I can’t win. The Lunacy gene has taken hold of me, too. One, two buckle my shoe. I don’t care if I die see; the excruciating days are too hard to fill. I came back home. Home, to the safe, happy childhood home I once knew. It’s less happy now. There are fewer nursery rhymes. There are only mornings, where I wake shaking and take pills. Lots and lots of pills, I count. Ten a day, sometimes twelve. I don’t want them, fuckers one and all. I hide it best I can. Inside I am a ticking time bomb, shoeless, crying, screaming, I’m so sorry I didn’t make you proud. I gave it my best shot. I hide the pain, the fear, the paranoia, and the overwhelming anxiety the best way I know how. In the bottom of an old, outgrown, dated, and worn down shoe. I’m sorry, really so very sorry I never meant to lose my mind. I’ve always wanted to come back to you, to make my mother and father proud. I lie most days, I do. Sometimes that even makes me feel better. I can forget the ugly future that awaits.
I am penniless, wandering with no direction. One, two buckle my shoe. I end up in an institution or worse on the street. No one cares. They barely saw me before. You see, while my parents were busy clapping my way into adulthood, I saw it. The times they were preoccupied doing the dishes, mowing the lawn, getting on with life. They missed my first steps. Not on purpose, not without regret. I know they tried their best, I know they did. But, I’m still looking for that first and final clap. It never comes. I will always be out of step.
I drink Ginger with a bit of Ale to ease the relentless ad nauseam that is the day. It’s winter here. We have had an easy time of it. Today, the sun shines and I reminisce. One, two buckle my shoe. I can’t remember the full verse. I guess it doesn’t matter anyhow. I will ask my mother. No, no I must not. I must learn to walk on my own, however blistering and uncomfortable the shoe. The numbness fits.

originally published April 2012 brooklynvoice.com

“Because you, more than anyone I have ever known loved being alive.” L.B.H.

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Lupe and I must have walked the loop at Hoopes Park a thousand times, or more.

In ten-degree freezing black ice, navigating lethal dangerous walkways (and fallen more than once), on grey-cloud, weepy wet gloomy days.

You name it. We’ve dredged through it.

It helps, ya’ know. The walk.

To free the brain from the pressure, dark and dangerous thinking.

Easing up, releasing the unrelenting anxiety.

When we walk past the white pristine house with the red door, I have to fight the urge not to run up and knock.

Or barge in.

She’s not there.

I know this to be true in my head, but my heart searches for her.

Missing every puzzle piece and all her silly ways. Her sage advice, too.

The water fountain, Buddha and Zen room she created, so proud to show me the space.

Her home with the red door is just a dwelling now, somebody else’s house we pass on the walk.

Suicide was never her choice, she just couldn’t stay.

I don’t believe there are coincidences, I choose to believe there are signs along the way.

L.B.H., I believe you threw me one today.

It’s the perfect sixty-degree, pretty blue sky day with sunshine peek-a-booing through the clouds.

Like a child playing hide and seek, giggly and covering their mouth to contain the excitement.

Just like a happy child, exactly like you.

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http://standagainstsuicide.org

Thanks for the Buddha, water fountain, precious memories and luminescent magic that was your life.

The Zen room has a new home, with me.

I’ll do my best to keep them safe.

I’ll do my best to keep you safe, using my voice.

I stand against suicide, because your life matters.

Because you, more than anyone I have ever known loved being alive.

You, and your gypsy-free spirit, brilliant, bold, courageous, compassionate, goofy, non-judgmental, all-encompassing, curious, big beautiful love would be walking right beside me.

You are.

I can’t see you, but I feel your presence in mine.

I did not forget.

2 days and eight years gone is too long.

You were, and continue to be forever loved.

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